Dominic Update 4.0 – Brown Eyed Baker

Amanda M. Rye

Hello every person! I cannot consider that we are on the cusp of Labor Working day and summertime coming to a shut. The final 5 to six months have been a overall blur and this summertime, in certain, has flown by. There’s been hospitals (chemo, stem mobile harvest, surgical treatment), clinic appointments, and driving back again and forth to New York.

But, a single foot in entrance of the other and 1 working day at a time, we are grateful to be heading into a new time with a powerful boy and hearts total of hope.

Dominic had a occupied to start with handful of months of August…

🔍 Initial, he had a new established of scans (MRI + MIBG) in addition an additional bone marrow biopsy. The scans continue to exhibit ailment in the course of his bones but most of the places are “dimmer” than prior to, and the bone marrow involvement diminished by around 50%.

So, there is even now perform to do, but there is an improvement. And! Dominic did both of the scans without the need of anesthesia (he has been sedated beforehand because you have to lay entirely still and the MIBG is more than 2 hours). He’s a rock star.

🏥 Upcoming, he experienced his to start with round of immunotherapy. The antibody he’s provided targets the protein of neuroblastoma cells and due to the fact they normally sit on nerve cells, there is substantial nerve ache accompanying the treatment. The infusion is small (45 minutes) but rigorous.

There is a whole lot of pre-medication and pain administration in the course of and just after, and he would generally slumber the complete rest of the working day afterward. But, the treatment options are outpatient so no medical center stays, and they don’t impression counts like chemotherapy, so no neutropenia or blood or platelet transfusions.

🦸‍♂️ Then, he crossed off yet another huge hurdle… radiation. He did this awake with no anesthesia as well… 2 times a working day for 5 times, he was strapped down employing a specific mask that was molded to his head and higher human body to hold his head and neck in the specific very same placement each individual time (his clavicle was radiated due to the cluster of diseased lymph nodes that ended up there, as perfectly as the tumor bed in his stomach). An amazing woman who functions there has the children decide on what they want their masks to be and then custom paints them… Dominic selected Iron Guy. There are some exceptionally distinctive individuals in this entire world.

He could also select whatever tunes he required to be piped in each and every time and chose Christmas audio each working day 💕🌲 He totally rocked it and the individuals doing work there have been definitely phenomenal.

➡️ Next… we get to be dwelling for a couple of months, then it is back again to NY for another spherical of immunotherapy, a new set of scans, and a further bone marrow biopsy. 

📘 In the meantime, he started off kindergarten this week! He’ll be joining course practically right until his oncologist offers him the go-ahead to show up at in human being, which we’re hoping will be late September.

💈 His eyebrows, eyelashes, AND hair have all begun increasing again! He’s experienced a ton of vitality, has acquired again all of the weight he missing soon after operation and that previous round of chemo and is or else performing truly, definitely properly.

❤️ Thank you all for your continued prayers, it indicates so considerably to our family.


In other news, I am setting up to get some emails scheduled out heading into the slide and holiday break season to refresh some web page information. So, you can search ahead to me popping into your inbox far more often in the coming months 🎉

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